A new Cystic Fibrosis diagnosis is scary enough but imagine if you don’t have accurate information about the disease in your native language. This is what happened to Cesar and Nora Hernandez who reside in the Grand Rapids area. The couple shares their story about raising their 16-year-old son Alex (who has CF). The couple shares their journey in this CF Master Class.
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Cesar and Nora: Challenges when raising a child in the U.S. as people of color
- CF Master Class: Cesar and Nora Hernandez
- Diagnosis Story: Alex
- Family History
- Diagnosing the Hispanic Population
- Diagnosis Advice
- Access to Information in Spanish
- Advice for Newly Diagnosed Families
- Connecting with Hispanic CF Families
- Grief Over The CF Diagnosis
- Alex’s Strength
- Siblings With CF: One With, One Without