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CF Global Master Class
Raising a child with cystic fibrosis (CF) outside of the United States comes with many challenges. Unlike the U.S. many...
Free
Kim Bowman: Losing one of your two children to CF
Kim Bowman – Having multiple children with CF is tough. Losing one of your two kids to the disease, is unbearable. In her CF Master Class Kim talks about living life after Blake died at age fourteen. Kim and husband Brian learn to move forward with their son Brett and the challenges and triumphs Brett’s double lung transplant brings.
Free
Kati Pannecouck: When an invisible disease becomes visible
Kati Pannecouck – CF, the invisible disease. If you saw 14-year-old Ben swim, you probably wouldn’t think he had any health issues. In her CF Master Class Kati talks about how her son keeps going regardless of his visible feeding tube, and other CF challenges and scars.
Free
Heather Trammell: Raising four year old Charlie
Heather Trammell – Grieving the life she thought her 4-year-old son Charlie would have, was a process. Heather, in her CF Master Class talks about the decision to only have one child after learning about the gene she and her husband carried. Heather says she is an open book about how CF impacted her and dove headfirst into the CF Community.
Free
Samantha Green: Allowing your CF child to dream
Samantha Green’s son is the middle child. Ethan is 9 years old and loves football. He hopes to be the first football player with CF to play at the National level. Samantha shares the importance of embracing your kids’ goals in our CF Master Class.
Free
Dena Johnson: Raising two kids with CF
Dena Johnson - Dena has two children, 9 year old Zachary has CF. In her CF Master Class Dena talks about the importance of exercise and maintaining as normal a life as possible.
Free
Julie McCaffrey: Young kids and mental health
Julie McCaffrey – Julie and her daughters have many health issues, including CF. Like so many people with a chronic illness, 17-year-old Jenna struggles with her mental health. In her CF Master Class Julie talks about the scary reality of dealing with CF, day by day.
Free
Joel Hersch: Raising three girls, one with CF, as a single father
Joel Hersh – When Joel’s daughter Shayna was diagnosed with CF, he was in shock. Then his ex-wife died, and he had to raise his three daughters on his own. It cost Joel relationships and challenges as he grew his company. In his CF Master Class Joel explains, he wouldn’t have it any other way.
Free