admin
Pete Odland: Adopting a child with CF
Pete Odland – bringing a child into the world with CF can cause a lot of guilt amongst parents, even if you didn’t know you carried the gene that causes the disease. This is one thing Pete couldn’t relate to. His 26-year-old son Dylan was adopted. But Pete and Dylan agree the father/son duo was meant to be as he explains in his CF Master Class.
Free
Heather Carmona: Learning your spouse has CF
Heather Carmona - This is our bonus CF Master Class with Heather. Her 56-year-old husband Scott has CF. The couple was unaware of the CF diagnosis when they were married, although born with the disease he wasn’t diagnosed until later in life. Scott’s sister Margie died from CF.
Free
Cesar and Nora: Challenges in the U.S. as people of color
A new Cystic Fibrosis diagnosis is scary enough but imagine if you don’t have accurate information about the disease in your native language. This is what happened to Cesar and Nora Hernandez who reside in the Grand Rapids area. The couple shares their story about raising their 16-year-old son Alex (who has CF). The couple shares their journey in this CF Master Class.
Free
Laura Bonnell: Starting a Foundation and Advocating
Laura Bonnell is the Founder of The Bonnell Foundation and has two adult daughters with cystic fibrosis. Laura knew as soon as Molly was diagnosed that parents needed more help, both emotionally and financially. In her CF Master Class, Laura talks about how her Foundation is helping parents, and all she’s learned over the years. As a former news reporter in Detroit she says her career allowed her to spread the word about CF.
Free
Sharon Tischio: Advocating and making change while raising a teenager with CF
Sharon Tischio gets things done. Her 17-year-old son Valentino has CF. When Creon enzymes needed an expiration date, she brought it to their attention. When Pari had a defective cap, Sharon made certain they were aware. Hear her story in our CF Master Class series.
Free
Tom Armstrong: CF Journey of Faith
Tom Armstrong never imagined he’d have a child with cystic fibrosis. He changed his work life to become the main caregiver for his 23 year old son Michael. He shares his journey of faith in the CF Master Class.
Free